Living with fibromyalgia
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WINNER OF THE PANDORA ADVOCACY CONTEST 2007
The story of a young girl named Holly Fraser, who has to endure a life with the incurable disease Fibromyalgia.
more info can be found at
http://www.diagnosesupport.com
http://www.pandoranet.info/advocacyvideocontestwinners.html
©2005 elfling productions
http://www.elfling.co.uk
Duration : 0:2:59
Categories: fibromyalgia
agree
agree
I’ve had pain for 2 …
I’ve had pain for 2 years now and they still don’t know what is wrong! MS or Fibromyalgia? Getting really tired of the pain!!
My chiropractor has …
My chiropractor has almost cured me of fibro. It was due to pinched nerves in my spine that showed on x-rays, you just have to go to someone who has experience with actually reading them! Hope this advice helps! Oh yeah and don’t say u have already had x- rays and the doctor did not find anything because you need to keep trying and pushing past the obstacles like I did. I could barely walk then, now I can run full speed!
Awesome video, my …
Awesome video, my heart goes out to Holly. It’s supporting to hear from others my age who also manage Fibromyalgia. People typically develop the disease when they’re older, but its especially hard having to live with fibro when you’re only a teen and in your prime years. It’s really scary to wonder what it’ll be like in 10 or 20 years. Having a positive attitude really helps though! It is possible to lead a normal life!! It just takes lots of management and a positive attitude! Good luck Holly!
I have been in pain …
I have been in pain but not from fibromyalgia, I have found something for it and have friends that have fibromyalgia and it has done wonders for it.
OMG how old is …
OMG how old is Holly? she seems to be about my age!! FINALLY, anothor girl my age who knows! what a relief to know I am not the only woman my age with this.. F**KING fibro anyway…
I live in horrible …
I live in horrible pain every day…my life went from a 10 to a 2 in 9 years…stress flares it. I lost my oldest son 5 months ago in a accident…and my pain doubled.
Orange juice …
Orange juice produces the same level of negative ions as Kangen water. Kangen water appears to be a product designed to make money and not much else.
where do I get this …
where do I get this Kangen water from? I’d like to know because I don’t have any medical and my life is almost non-existent. Just about everything I do takes more effort than I am even willing to give it, can you please give me some more tips, thanks.
Having suffered 17 …
Having suffered 17 years, I understand. They didn’t know what to call FM when I first had it. I started taking this myvemma(dot)com/GregGies and in 2 weeks I got off 9 medications! This stuff really works. Check it out, you have nothing to lose but PAIN. I wish you all the relief I have found (and I’ve tried just about everything). Hugs!
FIBRO PATIENTS THIS …
FIBRO PATIENTS THIS INFO. IS CRUCIAL TO IMPROVING!!!!! Everyone get X-rays of spine. Fibro in some cases is caused by subluxations! I found this out from my new chiropractor and it can be corrected! Isn’t it great?! What did not show up in blood tests has been found! I’m alredy getting better, and don’t say it can’t be fibro because I’ve had every test in the book and tender point test & everything.:)
In you tube search …
In you tube search type: Dr Whiting :check out his video on fybromyalgia treatment
Read from bottom up …
Read from bottom up to make sense………
If you did not get WORSE during antibiotics you MAY NOT have a tick borne illness… if you did…..look further. My wife still has fibro, but she is getting better. Take care.
Western Blot is …
Western Blot is typically negative in the Chronic Lyme person. A “CD57″ lab test is specific to Chronic Lyme (Borrelia)…. if read by a Lyme Competent MD. Also MOST labs are absolutely INCOMPETENT for run a Western Blot; and the sicker Chronic Lyme person is VERY likely to have a NEGATIVE WB. Use only IgenX if you persue this. Some are getting better!
My wife was dx with …
My wife was dx with CFIDS and Fibro 6 y ago. declined until I got her to someone who could make THE CLINICAL DX for Tick Borne. 1/07 she was pre-terminal. Today she is about 30%. Must consider Borrelia, Babesia, Erlichea, Bartonella.. most have a “SOUP” of these critters skating around inside them.
that’s a fair point …
that’s a fair point. i presumed everyone gets checked for lyme early on. and as far as i remember, most people have epstein barr but not fibromyalgia.
Holly you’re such …
Holly you’re such an awesome inspiration! I love you always! Regards, Rutt
Your lucky you have …
Your lucky you have family and friends to support you, not everybody with a chronic condition has that support.
Keep up the good …
Keep up the good work, we need to raise awareness and find a cure!
It is a dead-end. …
It is a dead-end. Mine began with CFS, which I still have despite antibiotic therapy. Most of us have simply been too well poisoned by the environment, at least that’s MY take on a lot of cases.
2hot, actually I …
2hot, actually I very much agree with you. I just don’t want people to ASSUME they do not have an infectious source for their problems. Even if one finds a Lyme related cause for their illness; people find many different paths back to better health. My concern is that Fibro is such a dead end Diagnosis…. which in reality is just symptoms of SOME SORT OF PROBLEM.
loggerbuck you are …
loggerbuck you are like a broken record. Some people find something that works for them, then DEMAND everyone else follow them. There is NO one-size-for-all in fibro. If you are cured, great for you!!
Do you mean it …
Do you mean it helps with the fatigue? I take Ritalin. It helps the fatigue just a bit, but doesn’t help the pain or other symptoms at all.
Your Epstein Barr …
Your Epstein Barr viral infection is likely similar to my wife’s Chlamydia Pneumonae chronic infection…. merely a symptom of a bigger problem. This is like Shingles erupting from a previous Chicken Pox infection that is allowed to reappear because of the immune system’s compromise…. Likely Tick Borne infections or Mycoplasms; likely more than just one.
Certainly you can …
Certainly you can have Fibro without having Lyme but… If you do not use and EXCELLENT lab for your WB you are just spitting in the wind. If you do not have a doctor that can diagnose Lyme WITHOUT a + Western Blot… same. “Lyme” is understood now by many to implicate multiple co-infections…Babesia, Bartonella, Erlichia, various mycoplasms, various viruses all working in concert with errant DNA, and Exotoxiins to make you ill.
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